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New Years in Boston

We were being told that pending one final ECHO, Gage would be able to go home this week. Unfortunately, this morning we were told that the results of his ECHO were not looking good enough to go home. There was some concern that the valve may be having trouble with regurgitation due to possible infection of the endocardium tissue which could be affecting the artificial valve flaps.

More concerning however, was the fact that his left ventricular function seemed to be worse as well. Basically, the part of the heart responsible for pumping the blood out to the body was weak. This now has Gage staying for an indefinite period of time again. We're hoping that a change in some of his meds will help turn things around. His team has stopped the Sotalol and hopes to maybe see some improvement in function although we may see the SVT resurface.

For now Gage will settle for sharing his smile with the nurses and visitors at Boston Children's Hospital over New Years. Gage turns 7 months old on January 3rd.