On June 3rd, Gage turned 4-years old. He woke up at 7 a.m. to the sound of a Spider-Man bounce house inflating in his backyard. He jumped out of bed, ran outside in his pajamas and was ready to climb in before it was even halfway inflated. We got him his first pedal bike and he couldn’t have been happier. Within minutes he was pedaling down the sidewalk all on his own.
It’s been over a year since he’s had any SVT episodes. His last episode was back on April 8th, 2018. It’s easy to think that maybe the problem has corrected itself but based on everything we’ve been told, the chances of his SVT issues going away are slim to none. I think it’s safe to say the beta blocker is doing its job. Dosages haven’t really changed since Gage hasn’t grown much.
He recently finished Pre-kindergarten and within the last six months has greatly improved his speech. He’s now willing to repeat words and phrases if you ask him to, whereas previously he’d only shake his head from side to side if asked to repeat something. He’s expressing himself more and using words to ask for things, sometimes with the help of sign language.
Gage with big brother Gavin at the beach building sand castles.