Gage continues to do well with no SVT episodes since that first week of May. It's been almost six months without any SVT which is probably the longest time period Gage has ever gone without an SVT episode. He's doing great in all of his therapy sessions although he isn't talking still. He says "Da Da Da" when he really wants my attention but not much else. The other day Kristy thought he said "Hot Dog" but he hasn't said it since. He completely understands us and has proven that his vocabulary is where it should be at his age; perhaps even better. He answers questions nodding his head "yes" or shaking his head "no."
We were recently told that Gage may have his G-Tube removed anytime we're ready to switch him over to oral medication. Great news of course, however we've only started giving meds orally for about a month now and are a little nervous about losing the access a G-Tube provides. There is some risk that Gage may choose to refuse his meds much like children refuse to eat vegetables. In that case, we would have a big problem on our hands.
Gage currently takes all his meds by mouth except for the 11 pm dose because he's already asleep by then. We're going to try and arrange to have the G-Tube removed in the next month or so. It won't be fun for Gage but he's a tough boy and I think he'll be glad it's gone after a week or so.
Gage recently went back to Pennsylvania to see mom's side of the family. He had a blast and definitely opened up a little more to family and friends. Prior to this trip he'd become so shy that he'd cry the minute anyone would try to hold him or even talk to him. His big brother is still his number one fan although he's become a big "Daddy's Boy."
Normally, Gage would look away anytime we would try and take a photo of him. Recently, he decided he'd smile on command. "CHEESE" we say!