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To read about Gage's story from the beginning you may visit http://gagejohnsonisafighter.weebly.com where mommy blogs.

No G-Tube

Gage didn't end up getting the surgery for the G-Tube or his reflux. His echo last Tuesday showed that his heart valve is apparently getting worse. His scheduled procedure was put on hold for one week. Today Gage went in for another ECHO and it was confirmed that his valve continues to is getting worse.

He is now too risky to go into surgery for anything other than a new heart valve. His team of doctors will now be evaluating how soon he will need another heart surgery. The likelihood of getting his 4th open heart surgery appears to be high. His heart valve wasn't running at optimal standards when he left Boston and although we knew it wasn't perfect we thought he'd get more than just a couple months.

His doctor at Rady Children's doesn't believe that Gage is sick either. It is believed that his symptoms are actually caused be the reduce valve function. Essentially his lungs can't work to their fullest if the valve continues to weaken or struggle.