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To read about Gage's story from the beginning you may visit http://gagejohnsonisafighter.weebly.com where mommy blogs.

Home Sweet Home

Mr. Gage is finally home. He and Kristy got back last Wednesday evening and just in time for big brother Gavin's birthday.  Since Gage has been home, he's been his super happy self as usual. He managed to pull out his feeding tube (NG Tube) twice so far requiring a rush trip to the hospital both times.

Without his feeding tube, he'd get no nourishment since he still isn't taking a bottle and doesn't like being spoon fed either. Without his tube, he'd also get fed up with his oral medication very quickly. In only one day we manage to administer about 19 different doses of medication. We go through syringes like they're paper towels.

I can't imagine him making it a full day on his med schedule without that NG tube. Giving meds by mouth is extremely difficult to do and ensure that Gage takes the full dose without spitting any out. Especially when most of them don't taste like candy. Still, we hate seeing that tube stuck to his cheek and can't wait until we get to go back to normal feeds.

Mommy does an incredible job of keeping up full-time with Gage's hectic schedule. He just started teething too which makes him fussy especially in the evening. All things combined make for very little sleep time in our home. Worth it though to have Gage back.

We're continuing to try and get Gage to drink from a bottle or eat baby food from a spoon but he's definitely stubborn. Ironically though, he'll stare you down while you're eating a meal as if by some chance he might telepathically redirect the food into his mouth.

My apologies for the delay on this post. Free time is very rare.