Gage has been doing very well. He’s not had any SVT episodes since the last post. He has been going to school and really enjoying it. He still isn’t talking but does seem to making a little more of an effort to try and make sounds. He’s a long way from saying any real words or sentences. He hasn’t grown much over the last six months but that’s no surprise considering he barely eats a full meal each day. He’s super picky and will refuse to eat unless he’s absolutely starving.
I’ve no doubt that much of that is a result of having had the g-tube for so long. On the other hand, I didn’t eat much when I was little either. My parents always said I only ate enough to keep a baby bird alive up until I was a teenager. I’m sure it’s just a phase and over the next couple of years his appetite will increase. We’re just grateful that Gage has stayed out of the hospital as long as he has thus far.
Gage still loves riding his balance bike and enjoys getting to participate at the BMX track. Below is a photo of him winning his very first medal. It was his first race and he finished last but he was so excited to earn his own medal and had a blast riding on the track.